Veronica | Headaches, Lymphedema, and Depression

Veronica Bearable User Story and Review
Veronica Bearable User Story and Review

Interview: How Veronica uses Bearable to manage Lymphedema, Headaches, Anxiety, and Depression

Interview & article by Jesse Driessen.
Published 23rd July 2024.

Veronica lives with Lymphedema, Headaches, Insomnia, Anxiety, and Depression. Recently, we reached out to chat about how Bearable is helping her to manage her symptoms, find helpful correlations, and feel more in control of her health.

How long have you been using Bearable and are there any specific health conditions that you're tracking or managing with Bearable? 

Well, I checked my Google Play subscriptions before this and it’s been almost exactly a year since I subscribed. So I think I started using it a little bit before then. I kind of try to track everything with Bearable.

I’ve used a ton of different apps for health, self-help, and mental health. I use it primarily for tracking mental health. I track depression anxiety potential triggers for those, sleep, and insomnia. I have a lot of GI issues – probably related to anxiety – so I track those too.

I have a lot that I try to work on in Bearable.

If we go back to before you were using Bearable, how was your Health at that point in time?

My health before always sucked. It just kind of sucks all around and I don’t expect an app to change that. I feel like using Bearable, I have a better idea of how, why, and in which ways my health sucks. 

Sometimes I learn there are things I can do differently to change that suckage and so I do feel Bearable is helpful. Even though it’s not a miracle app or a miracle pill, It helps me manage what I’m doing and what could be affecting the symptoms of my existing conditions.

It also helps me pay attention when there are new side effects or symptoms that pop up and it helps me track, for example; I only got three hours of sleep last night but Bearable reminds me that I also had two energy shots yesterday and that maybe there’s a connection there.

...using Bearable, I have a better idea of how, why, and in which ways my health sucks.

Was there anything specific that happened that made you look for an app like Bearable?

I think I was recommended to try Bearable by someone in a Facebook group. I think it might have been an ADHD group for women. Or maybe from a mental health article I read. 

When I downloaded it, at first I was a little overwhelmed. I do feel like I’m kind of lazy with my phone. I feel like there’s a lot more I could do with Bearable if I took the time to set it up to be exactly what I want it to be. To learn everything it could do with it. But right now, I have a lot in there already.

What would you say is the main outcome you've had from using Bearable?

I think it’s helped me pay more attention to myself. Before Bearable, I was just kind of like “I feel like crap”. Now I’m like “I feel like crap, this is how I feel like crap, this is why I feel like crap”.

I try to make those connections. I try to use better words to describe how I’m feeling and to get a handle on exactly what I’m feeling. And to potentially find out what could have caused me to feel like crap.

Earlier, you mentioned tracking triggers. Have you found that identifying potential causes for flare-ups has had an impact on your well-being or day-to-day life?

Yes, so I noticed that I wasn’t drinking enough water. I thought I was drinking enough because I have this giant flask of water – and I fill it with ice more than I fill it with water – but I just wasn’t drinking enough. 

When I sat and tried to track how much water I was actually drinking, I quickly realized that I wasn’t drinking enough and it was contributing to my migraine headaches. So I was able to reduce the amount of times a week I need to take my emergency migraine medicine by improving my hydration.

Of course that doesn’t work 100% of the time to get rid of them, but it has reduced my headache overall, which is great.

I also have a combination of Lipedema and Lymphedema. Bearable helped me discover that my symptoms are more related to Sugar than Salt – which was surprising. Usually, you hear that salt increases swelling. But I started to notice that on days when I had a moderate amount of sugar, I also had more severe swelling. In Bearable, it was just a clear pattern. 

I had no idea that Sugar could cause cholesterol like that but it kind of makes sense. Because it’s a fatty deposit and because sugar feeds inflammation. I knew that before but I didn’t want to admit it. I tried to ignore that I was like “No, sugar makes me feel good.”

So paying attention to my salt and sugar levels in Bearable, I’m able to to reduce some of my swelling. Not all of it, it's got a mind of its own, and it does what it wants - but it definitely does help.

We often hear from Bearable members that they’ll speak with their doctor about their insights. Is that something that you've used Bearable for yourself?

I avoided going to the doctor for a while. Over the past 12 months, there was a period where I avoided going to the doctor. I was trying to take care of my cats before myself and I just didn’t have time to go to the doctor.

But, in general, I see so many doctors. I’m actually wearing a heart monitor right now. It’s this weird one that is taped on with a button on it. You have to leave it on for two weeks and then I have to take it off and put it in a box and mail it. Then put on a second one for another two weeks. It’s just collecting data. 

They didn’t tell me how much insurance is going to cover it. They said “We’ll figure that out after we process the data” and I was like “No, you’re supposed to do that before you do anything”. They didn’t even tell me they were putting it on until they were putting it on me. I didn’t even have a chance to say no.

So, I see a lot of doctors and it’s hard to keep track of everything I’ve communicated with them. When I do see them, it’s not always a positive experience.

Right now, my cardiologist is trying to change my medication. I’ll definitely be paying attention to the side effects in Bearable because I’m worried about them. So I’ll definitely be putting them in there.

They didn't even tell me they were putting it on until they were putting it on me. I didn't even have a chance to say no.

We hear from lots of Bearable members that they feel more in control of their health or - have a better understanding of their health - after using the app. Have you had a similar experience?

Yes, I think so. I feel less passive. My health isn’t something that just happens to me anymore. It’s something that I have more control over now.

Being able to pay attention to the things that I do. Pay attention to the things that happen to me. Pay attention to the things that I feel throughout the day. To see the connections between things that happen and my health. To look back over time and make choices based on the data I’ve collected. 

It makes me feel more in control because I DO have a say in how I feel. I can make these changes that positively impact my health.

My health isn’t something that just happens to me anymore. It’s something that I have more control over now.

I think it’s fairly common to feel like most of the advice for managing symptoms is very generic or not very personalised. For example, eat better, hydrate better, get more time outdoors. Has that been your experience too?

It’s hard to do dietary changes. It takes so much work to cook healthy meals and a lot of money most of the time too. Especially, If you don’t have the physical or mental ability to stand at your kitchen counter cutting vegetables and cooking for like an hour. 

People say “Eat vegetables” or “Eat healthy” and it’s like “Well do you want to come over here and make it for me!?” 

There are also a lot of people who live in food deserts here. There’s literally nowhere to buy produce for like 20 miles. That makes you feel even more isolated too.

Is there anything that you would like to add? Or any advice you have for maybe somebody thinking about using Bearable?

I’m not normally a ‘charts, numbers, and data’ type of person but I really appreciate how Bearable makes things visual for me. It shows me correlations between things like the weather, fatigue, and headaches! That is a huge part of it, especially considering where I live (Oklahoma).

I think some people might be put off or intimidated by the idea of something that tracks all this data or that is so numbers-based. But it’s not really, it’s very visual. I think anyone who has thought of trying Bearable but might be put off by these things, should just try the free version first. Just give it a shot.

There’s a lot you can do with a free version without even having to subscribe. There’s a lot you can do with the subscription too but there’s just so much you can do with this app.

I wish I was more disciplined with using it but when I do use Bearable consistently, every day, it pays off immediately. I’m really glad I got it. 

If anyone's on the fence they should definitely just try Bearable.

Note. The names and information in this article have been used with the permission of the interviewee.

Kayleigh | Dysautonomia, Anxiety & Depression

Bearable Review - Dysautonomia, Anxiety & Depression
Bearable Review - Dysautonomia, Anxiety & Depression

Kayleigh's Bearable Story & App Review.

Interview & article by Jesse Driessen.
Published 7th June 2024.

Kayleigh lives with Dysautonomia, Postural tachycardia syndrome (PoTS), Mastocytosis, Anxiety, and Depression . We spoke with her over Zoom to find out how Bearable is helping her to manage her symptoms, aid with the diagnosis process, and come to terms with changes in her life.

Just to kick things off; do you want to let me know how long you’ve been using Bearable and then also the different health conditions that you’re managing with been Bearable as well

Yeah, I’ve been using Bearable for about three months. I have Mastocytosis and Dysautonomia and depression and anxiety as well. Mastocytosis is when your body produces too many Mast cells and it affects my whole system, my organs, everything. It can be very mild or severe and I’m somewhere in the middle. It’s moderate. 

Dysautonomia is an umbrella term for lots of conditions. I have PoTS as well, which is also a form of Dysautonomia. Your heart and brain struggle to communicate properly about changes in blood pressure when you stand up or sit down or lay down.

I use the term Dysautonomia because Mastocytosis also falls under Dysautonomia and I have some chest pain from the two conditions. It's a little complicated but that's what I have.

That makes sense, thanks for explaining. Would you say there are specific symptoms of those conditions that are more severe?

Yeah totally. Lots and lots of fatigue. I’m always tired. I take lots of naps and when I wake up I don’t feel rested. Stomach issues, digestion issues, nausea, acid reflux. The abdominal pain is the worst though.  

Oh Mastocytosis – I’m sorry I forgot to mention this – it comes with anaphylactic allergic reactions and you don’t really know what triggers them. So that is definitely a challenge. I have two epipens on me at all times because – whilst I have an idea of what my triggers might be – who knows if it could be something random one day. That’s just that’s probably the most severe and worrying symptom I guess.

You’ve been using Bearable for about three months. Do you want to tell me how your health was – or how you were managing your health – before you were using Bearable?

I was using the health app on my phone and I was really only using it to track all my medications but it was not doing much because you can’t. There’s not many things you can like put in there. If you want to track your symptoms it’s kind of complicated and not good for in-depth tracking at all. So I wasn’t really tracking much. I would sometimes write things down in my notes but that’s not a very reliable system either.

Then I saw the ad for Bearable and I thought “Wow, this looks definitely like something that would help”. I downloaded it and I started using it every day and now I actually have something to show to my doctors and the health professionals that help me. I can show them how I’m feeling based using Bearable. How my symptoms change and the things that seem to affect my symptoms. It’s so great that you can track the weather in Bearable too, that’s awesome.

Honestly the best thing about Bearable is just being able to track my symptoms. Being able to track it in-depth and have something to show somebody who needs to know. It totally helped me get control of and find ways to manage my health.

The topic of native or generic health apps is interesting. For so long it felt like they were designed just for people who are already healthy. They’re not really apps for people with illnesses or health conditions. 

Apple Health has introduced some sort of mental health and symptom tracking but I still get the impression it’s not really designed for people with complex health issues. It’s definitely problematic. So I’m glad to hear that Bearable is filling that gap and addressing that need.

Is there anything else you’d like to tell me about how bearable has helped you to prepare for doctors or medical appointments? 

I don’t have Bearable Premium but it still works fantastically without a subscription – like looking at weekly and monthly trends in symptom severity scores. I don’t know what the chart is called but it’s fantastic. 

I’ve actually shown it to my doctor – one of my specialists – and even she thinks it’s fantastic too because it’s very hard to collect that much symptom data yourself (without an app). So it really helps me actually know what I’m going to talk about (in an appointment).

When I go to doctors I struggle with remembering everything I need to say to them. Actually being able to talk about my concerns and having the option of showing them my progress or my feelings [in Bearable]. It helps me prepare for sure.

It’s good to hear that they’re receptive to seeing reports because I’ve heard from other members of the community – who’ve attempted to show reports to their doctors – and sometimes they’re just not interested at all. So I’m just glad you’re working with medical professionals who want to look at your symptom data – that’s definitely positive.

If you had to pick one thing that Bearable helped you with the most, what would you say that is?

Well – in my opinion – it helped me get diagnosed with PoTS and Dysautonomia because I didn’t really even know about Dysautonomia. Then, I was talking to a friend who has it. I was showing her the app, showing her my symptoms and my heart rate. She’s like “this is really high, like chronically high and – you know – like how it is for PoTS.” That definitely helped me a lot.

I went to a physiotherapist to do a tilt table test and – because I went on a really good day my heart rate wasn’t as severe as normal – I showed him my heart rate readings in Bearable (to help him understand how severe they are on bad days).

Outside of experiences with medical professionals, has Bearable had any sort of impact on how you manage your health or even just feel about your health? 

Yeah, definitely. I feel more in control. Honestly, like I have a way to actually put it all down and actually track my symptoms and see the correlations. 

Also because I’m quite new to having a chronic illness. It’s only been about six months. Knowing that there are people out there who also have experienced something like I have and that they also use this app.

If I need to reach out to someone, the community is there. Because Bearable’s designed specifically for chronically ill people - which is amazing because most things aren't - it gives me peace of mind that I'm not alone in this.

I’m really happy to hear that. That’s one of the things we want to try to do even more with. We have a Discord community and a Reddit community but we definitely want to connect people in the community because some of the support that’s available is amazing. 

One of our favourite things – as a team at Bearable –  is seeing people within the community just helping each other on tough days, giving a bit of advice, and just supporting one another.

Has Bearable helped you to find any useful – or even unexpected – triggers? 

Yeah the weatherI had no idea (how much it impacted my health) and it totally changed how I see my symptoms and even my mental health too.

Of course, I knew people can have a change in mental health with the weather but I didn’t really even think about how it might affect me at all. Then I started looking at it and I’m like “wow it’s cloudy today and I have a lower mental health rating than when it was sunny”. That really helped. With my symptoms – especially the fatigue and dizziness – the weather tracking has really been a game-changer for sure.

Food tracking is really good because I’ve discovered that some food products that contain gluten trigger some symptoms for my stomach. I wouldn’t even have thought about that because I got tested for celiac disease and I did not have that. So I totally didn’t think that it would be a factor impacting my health.

That seems to be  quite a lot of people’s aim when they initially use the app. They want to sort through the minefield of everything that could be causing issues and start connecting the dots.

Would you say there’s anything else that you maybe want to touch on that Bearable’s helped with?

So, before – like way before – all of this started, I did Ukrainian dance. I was dancing four times a week and was really healthy. All of a sudden all this happened (with my health) and I had to quit. It was honestly devastating. I had a dream to be in this very specific ensemble that I had been dancing under for my whole life. I got there and I did my first performance and it was probably one of the best days of my life. Then a few months later this all happened and I had to quit. It was very sad for me.

I had a lot more mental health issues than I’d had previously. I’ve had Anxiety and Depression for a few years but it kind of all came back because I couldn’t let my feelings out through physical activity. I just couldn’t do much physical activity anymore because of the symptoms I was experiencing. So there wasn’t any way that I could let it out. 

The mood tracking tools in Bearable totally helped me realise that this was not not good for me. I mean – I knew it wasn’t good – but it was not good mentally and then my mood rating for the day was slowly declining and all my symptoms were quite severe. Mental health totally has a correlation with your (physical) health as well. Even if you have a chronic illness or not. I found that if I was having a bad mental health day, I was probably also having a bad physical health day with my symptoms too.

That helped me because one of my doctor's is very supportive with my mental health. She helped me get some new medication and bring me back up to a good place mentally. I showed her the mental health correlation with my physical symptoms. So Bearable helped me to get a clearer picture of what's going on (with my mental and physical health).

Related to your own experiences as a dancer; a lot of the members of the community I speak to have their lives derailed by chronic illness.

Recently, I was speaking to somebody who was on the track to being an Olympic Athlete – a long distance runner – and she started suffering with ME/CFS basically and it just completely changed her entire existence. 

Having to give up on a dream and completely readjust who you are just because you have this condition – that can’t necessarily be diagnosed or treated – it really sucks. I’m really sorry that you had that experience.

It sounds like maybe you’ve come to terms with it a little. Or that you’re making progress with it. Is that a fair assumption?

The decision to quit was so, so hard but now I definitely know that it was for the best. There’s a chance I can maybe go back – we’ll see –  but that’s not that’s not something I need to worry about right now. But yeah, I’ve come to terms with it.

Do you have any advice for other people who live with your unique mix of chronic health conditions? Or maybe for anybody who’s thinking about using Bearable?

Well, for me, Bearable totally changed my health journey and how I track it all. Honestly, even if people don’t have a chronic illness I think it would be great to use. Just because everyone has a headache once in a while or stomach ache once in a while. 

Even if it’s not something to worry about, I think it’s nice to track it at least. Because, if it becomes something that needs to be addressed, it’s nice to have that pre-information. When I had to start this journey I had nothing to show (my doctor). All I could tell them was “my stomach hurts” there was nothing for them to go off of.

It’s good to track your mood whether it’s unbearable – or something else – even if you don’t have a mental illness or anything like that, it’s just very good to track mental health always. 

For people who might have something like I have – of course every case is different – it’s definitely a game changer for my health. I have something to show medical professionals. I have peace of mind for myself. I’m more in control and I’m starting to learn what my triggers are. Or how I feel day-to-day. Yeah it’s totally worth it. 

Like I said before, I use the free version of Bearable and it's so good even without a subscription. I've been considering purchasing it but even without Bearable Premium, it's so helpful. It's such a great tool and definitely something that I would recommend to everyone, chronic illness or not.

It’s actually really nice to hear that you’re getting value and getting some use out of Bearable even without having to pay anything for it. That’s how we designed it. We wanted it to be useful without having to pay money. Tons of people with chronic health conditions have limited income because of their health. That’s why they’ll always be a free version of the app.

You’ve mentioned feeling a bit more in control since using Bearable and you’ve also mentioned having a clearer view of certain things – mood trends, triggers, etc. Is there anything else you’d like to add?

Honestly just having a consistent way to track my symptoms is so helpful. Before I was trying to write it down in my notes app. Or write it down on a piece of paper – and that’s that’s okay – but for me, it was really hard to be consistent. Or to do it at certain times of day. 

With Bearable it’s good because I can do it twice a day-ish and (the mid morning and evening). So it’s always tracking how I’m feeling at that time every single day. It’s so much easier. I can look at my progress and seeing what medication is helping or if a specific physio plan is helping. My good days and bad days. 

I’m still in school, so it’s even nice to show my principal because she’ll talk to me about “missing lots and lots of school” because of my health and (before Bearable) I had nothing to show her. There was no diagnosis and I finally showed her Bearable one day and I’m like “Look at all this (severe symptom data). I’m not lying. I’m not just skipping school.” 

It's just nice to actually have something physical to represent how I'm feeling and how my health changes.

I always feel so frustrated that it’s necessary to show somebody an illustration of how you’re feeling, that they wouldn’t just take your word for it. But I am glad that you have a principal who was – like your doctors – willing to look at your data and say “This person isn’t lying to me. They’re dealing with real and severe health conditions.” That’s reassuring.

Is there anything else – other than Bearable – that you’d like to suggest to people? Any other apps, other resources, anything else you’d recommend to people who’re about to go on the journey that you’ve been on with your health?

One app that I used to use quite often is called How we feel. It’s specifically to track your emotions and how you’re feeling throughout the day. If that’s what someone is looking for, that’s totally what I recommend and you don’t need to pay for it either. 

I love apps like that. You don’t have to pay, or you have the choice to pay, and it just upgrades your experience like you can still use it very well without paying. I’m back to Bearable now but that’s another thing that I totally love about it because the subscription is optional. I know you mentioned that’s what you guys wanted to do and you totally totally hit the mark.

We’ve got about five minutes left, is there anything else that we haven’t touched on?

I’ve said it before but it’s 100% worth it to take five minutes a day – or five minutes twice a day – to log your symptoms. You can choose what you want to track and you can hide things you don’t want to track. There’s so many choices. The experiments too. I tried one, the vegan one I think. It was really cool because – I’m not a vegetarian or vegan but – it was really interesting to see how that way of eating impacted my health.

Note. The names and images used in this article have been used with the permission of the interviewee.

Jennifer | Migraines, ADHD, MCAS, Ehlers-Danlos syndrome, Anxiety, Depression, and Intestinal tract issues.

Bearable Review ADHD, MCAS, Anxiety, Depression, Chronic Pain, Migraines
Bearable Review ADHD, MCAS, Anxiety, Depression, Chronic Pain, Migraines

Jennifer's Bearable Story & App Review.

Interview & article by Jesse Driessen.
Published 29th May 2024.

Jennifer lives with ADHD, Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos syndrome, Anxiety, Depression, Migraine, Chronic Pain, and Gastro Intestinal tract problems. We spoke with her over Zoom to find out how Bearable is helping her to manage her symptoms, aid with the diagnosis process, and teaching her to be kinder to herself.

Do you want to tell me how long you’ve been using Bearable and any specific health conditions you’re tracking in Bearable as well?

Yes, I’ve been using Bearable since mid-February and I have kind of a lot of stuff going on. I have migraines that I got diagnosed with a few years ago. I’ve had intestinal tract problems since childhood – I can actually not remember a time that my stomach didn’t hurt – and it was pretty normal for me to always have problems in that area.

I’m late-diagnosed ADHD. I got my diagnosis this year (2024) and it explained a lot for me because I have severe time blindness. I also have Depression and Anxiety and probably Ehlers Danlos syndrome and Mast Cell Activation Syndrome (MCAS) but I’m I’m going for that diagnosis right now – with the help of Bearable.

What was the thing that happened that made you want to use Bearable and how was your health generally beforehand?

Because of my ADHD and time blindness, it was like swimming in a sea of uncertainty. I know I have symptoms today and maybe I know I had them yesterday but I can’t see the bigger picture.

For example, If I’m in pain I can’t see I’ve had severe pain symptoms for two weeks and that maybe I should go to the doctor. It’s usually my boyfriend who’s like “yeah you have severe heartburn for two weeks you should go to the doctor” and so it was very overwhelming.

[Because of ADHD time-blindness] I just don’t know what’s happening in my body and I don’t have a very good connection with my body. I also don’t feel hunger – I just feel pain in the stomach. It’s like I’m going “I’m not hungry I’m not hungry” and then suddenly there’s pain and that’s how I know I have to eat now.

I tried symptom tracking a few times before, like for my migraines. I had to check them - for the doctor - to get some kind of treatment. They always ask “how many days in the month did you have migraine symptoms?” so you can get this or that treatment. But it was very hard for me to do that before Bearable.

You’ve hinted at a few things that Bearable has helped you with – but what would you say is the main thing that Bearable has been useful for? 

The biggest part for me is being able to see what my body’s doing, listening to it, and being able to visualise what’s going on for more than just two days. Being able to look at the whole month or like the whole week [of symptom severity data] and giving myself grace because of that.

Usually I was like ‘I don’t get stuff done. I’m so dumb. I’m so lazy’ and then now I look at my symptoms and I think ‘well everything’s red – of course I don’t get stuff done!’ That’s the biggest thing for me.

I think it’s so easy to compare yourself to people who don’t have a chronic illness or ADHD and feel like you have to try to maintain that same standard.

The reality is that most people with chronic health issues are exhausted from dealing with symptoms that make it impossible to live up to these standards. So I’m glad to hear that we’ve helped to give you some perspective on this.

How would you say that Bearable has impacted your day-to-day life or your overall well-being?

Well my day-to-day awareness (of symptom severity) went up. I’m not taking supplements twice anymore because – yesterday I was like ‘I have to take my magnesium’ and I went to open the app and saw that I already took it two hours ago. So that helps. Also, giving myself grace when I experience a symptom, especially one that’s new for me or feels new for me.

The daily reminders and goals help. I added the daily Healthcare goal ‘Don’t eat late meals’ and ‘No soda in the evening’ because usually I drank a lot of sparkling water and I realised that’s not good [for me]. That helped me to remember that if I want [soda] to do it before the evening and to remember to cook at a certain time. I also set a reminder for that goal so it tells me ‘you should maybe get to cooking and deciding what to eat’. That helped me very much.

When I began using the app I explored the ‘No screens one hour before bedtime’ experiment and I realised I suddenly had like an hour to myself! The first time I did the experiment I was just lying on my bed and staring at the wall and was like ‘What am I doing with my time? What should I do now?’ Then I started to use the time for me and that was really good. I wouldn’t have made that change without the app. It was like a little challenge and I’m a sucker for challenges.

Bearable also helps with finding correlations. My doctor has always said “you have to do cardio it helps with your migraines – you should really do cardio” and I’m like “I hate sport because I hate the feeling of sweat on my skin”. I got an indoor bike and I was tracking the effect of the indoor bike on my migraine symptoms and it doesn’t do anything. It’s good for my legs and my general health – but it’s not like it suddenly makes my migraines go away. The next time my doctor asks “are you doing enough cardio” I can say “yeah, but it’s not helping and I can show you that it’s not working [with Bearable]”.

It also helps me to differentiate between symptoms like with ADHD task paralysis; where you want to do something but you can’t decide what you want to do so you do basically nothing. I just discovered that [about myself]. I thought I was just lazy but I realised it’s just that my brain doesn’t brain in these moments.

I can also identify when I’m procrastinating. Like, am I cleaning even though I have to do my thesis work? Or am I just doing nothing and feeling really bad – which is task paralysis. That helps me like to get perspective on what’s actually going on and identify what the actual problem is, right now. 

When I realise I’m in paralysis – the problem is you can’t decide what to do but – because I have this rule for myself; If I experience a really big symptom I record it in the app right away because otherwise I forget.

I know I can always open the app and check ‘paralysis = severe’. That way, I’ve already immediately done something and sometimes that helps break the paralysis. I’m able to say ‘okay at least I did something’.

You mentioned that you’ve been diagnosed with ADHD fairly recently. How has that diagnosis impacted your day-to-day life? Has it had a positive impact knowing that there’s a kind of a reason for your symptoms?

Yeah – the ADHD diagnosis – it had a very big impact. I understand more. I can research tips and tricks. Most importantly I do less negative self-talk. I still catch myself doing it every so often but it’s much less frequent now. 

Picking what to eat is so difficult for me and eating in general. One day I really like this food but the next day I can’t eat anything – I can’t force myself to eat. If someone says “one more bite” I’m going to vomit if they try to make me eat it. Even if I’m incredibly hungry, I can’t force myself and I’d prefer to be hungry. Because of this, I have to really pressure myself to still eat because of my Migraine. It makes the headache worse when you don’t eat regularly so it’s really difficult for me. But it helps to know it’s because of ADHD and it’s not that I’m a broken person. It’s just that my brain works that way.

Sometimes I can trick myself to do some things because I know an ADHD trick or something. So I’m just a bit kinder to myself – a bit more forgiving.

With my friends and family and my boyfriend; when I say ‘maybe I don’t write back because if I don’t see things I forget things’ or ‘if I don’t see you I might forget that you exist but I still love you very much’ or ‘if I see something that reminds me of you I’m thinking of you’ and ‘I love that person but if I don’t hear anything [from you] you don’t exist’. 

It helps when – if you have something important to tell me in WhatsApp – write ‘IMPORTANT’ at the start of the message so that when I scroll through I know that I have to answer that message.

Things like that [help me to advocate for myself better].

You mentioned speaking to a Doctor about the impact of cardio on your Migraine symptoms. Have you used Bearable in an appointment with a doctor and have you found that helpful?

Yes. I used Bearable in an appointment with my everyday doctor. I’ve been seeing this Doctor since I changed from my children’s paediatrician doctor – I’m 28 now – so he knows me very well. He knows I have stomach issues and all these things but I had an appointment to have my vitamin D levels checked and I decided ‘I’m prepping for this’ and – I had like two weeks of heartburn before that so I wanted to show him [using Bearable’s reports].

So I printed all the statistics; the average symptom severity score for all my symptoms, my stomach pain score, my heartburn severity score. I’m showing him my pain levels and I’m explaining how it works. I was like “these things are happening in my body every day. I don’t have a single day without pain! I want to do something about it.” 

He was said “I want to test for Mast Cell Activation Syndrome but I don’t know if you can test it with blood. It might be a lot of work and a lot of forms” and then he looked like at the statistics and I looked at him and he said “maybe it doesn’t hurt [to put in the work to do the tests]” and so Bearable helped me very much to get this thing tested.

Unfortunately, at my next appointment – when we discussed the blood work – I didn’t have my Bearable reports with me. When he asked me questions about my recent symptoms, I didn’t have the answers with me. I just wish I had the statistics with me because in the end the Doctor didn’t make a plan for me – there was no clear outcome from the appointment. But I will make another doctor’s visit and I will bring everything with me.

When a woman says ‘I have pain every day’, Doctors tend to think ‘She probably just has pain once a week and she’s exaggerating’. 

But if you have statistics and can say ‘I track my pain levels every day’ they can’t as easily dismiss you as being a sensitive female. So I really like the insights in Bearable. They help you to battle the negative stereotypes and fight back.

Do you have any advice for somebody who’s thinking about using an app like Bearable?

The thing that was most important to me – that I would also advise to others – is look if your data is safe because that was my biggest concern. When I learned Bearable is made by people with chronic illness and you won’t sell my data – that was so important for me. That was when I knew I wanted to download it and test it. So that’s the very first important thing.

Also, you should check to see if there’s a free version or free trial for the app – because I didn’t plan on getting the premium subscription. I read in the comments (on social media) that the free version of Bearable is good enough [for tracking everything that I needed to].

You also have to look if the app works for you. I went through so many trackers – paper ones and apps – and there were lots that didn’t work for more than two weeks for me. When the motivation, enthusiasm and the dopamine drop off, I’d just stop using them. I’ve been using Bearable since mid-February (4 months) that’s big for me – like really big – and you just have to know if it works for you. 

I used Bearable for two days and then there was a sale and I thought ‘yeah I’m getting the Bearable subscription’ – because I want extra time periods for reporting and the correlations – and because I know it works for me. It works because it’s very intuitive.

You’ve kind of answered this already, but why do you think someone should choose Bearable versus another app?

I have something to add; I like that Bearable is so customisable. Like for the food diary I started with English but now I just switched to German because I thought ‘why should I Google what paprika means in English?’ I like that I can just do stuff like that in German because it just makes the app more personal to me. You can customise so much.

With Factors I can track anything; like if my partner snores if I want to track that, I can add it! I can use my own Emojis and it makes it easier to quickly see things like ‘okay that’s that emoji – that means x’ and so I don’t have to read the app all the time. I can also hide stuff that doesn’t work for me.

Yeah, it's just so customizable and it's so intuitive you just have to click with your finger. It's just like ‘how's my energy now?’ and if my energy is high I just press high and it adds the time automatically. But if I forgot to add it I can still add it later in the day so I really love that about it too.

That’s awesome to hear. I think it’s one of the things that James (Bearable’s founder) noticed for himself. He lives with chronic migraines and tried a whole bunch of other apps [before creating Bearable] and realized that they’re all so clinical. They’ll force you to track very specific things that. Like you said, most apps won’t let you track your boyfriend snoring even if it affects your sleep.

Another thing I noted down that I wanted to bring up is the Bearable team. I really love supporting small businesses because I really love that you get to interact with real people. You really notice this if you have a problem or a question. [So many companies] have robotic answers that don’t even help you with your problem. It makes a big difference when it’s a real human being. I was glad to spend that money on Bearable because I feel like it’s going to the right people.

I’m happy to hear that because it’s a thing that we actively try to do. We want to be patient-first and we want to be human because there are so many apps that – like you say – are robotic or aren’t interested in helping people, just making money.

Is there anything else you’d like people to know about Bearable that might not be obvious at first?

To be honest, I didn’t know there were extra sections – like medication – I was just adding it to factors. It was a bit overwhelming and I was confused by my medication insights but then I discovered there’s a medication feature and I was like ‘Oh my god. Genius. Yes of course they have it!’

Then I was like ‘I wish I could track bowel movements’ and then I was like ‘They have a dedicated Bowel Movements feature!’ and it’s great because it even tracks the consistency. At first I didn’t know what to select and just picked something and was like ‘Oh my god! There’s descriptions [to help me what to select]’ – it’s so helpful. I even showed it to my boyfriend.

Note. The names and images used in this article have been fabricated to protect the privacy and identity of our users.

Lessons from a two year sleep experiment.

Bearable report on the effects of different habits on Sleep Quality

Two Bearable users tracked their Sleep & Habits for two years, here's what they learned.

Two years ago, one keen early adopter of Bearable (and his girlfriend) decided to track a number of sleep habits and behaviours to see what impacted the quality of their sleep:

Read his story below:

Why was I interested in conducting this experiment? Because, along with fitness and nutrition, I knew that sleep could play a huge role in my overall well-being. 

There’s a wealth of information about the importance of sleep and it’s impact on physical and mental health, which can include:

    • Reduced risk of obesity
    • Better insulin management
    • Better cognitive performance
    • Better mood
    • Better physical safety
    • Better learning and thinking
    • Better emotional and mental health
    • Reduced risk of suicidal ideas and behaviours

At this point in time, I had just begun to access treatment for chronic migraines and so I also wanted to do everything that I could to support this process. I hoped that by improving my sleep I could also improve my overall health and reduce the severity of my symptoms.

Having made myself familiar with many of the common sleep hygiene recommendations, I set out to understand the habits that would help me to manage my sleep and health better.

One of the first thoughts I had about Bearable was that it might help to highlight the different ways that people respond to common health recommendations. To put this to the test, my girlfriend and I tested a selection of common habits associated with better sleep and tracked them – along with daily sleep quality scores – in Bearable.

And then we waited.

🧪 The results of our sleep experiment.

Two years later, it’s fascinating to look back at some of the similarities (fasting before bed helped us both) as well as some of the differences (sharing my bed is terrible for my sleep but not my partner’s). In some ways, it has also generated even more questions about what impacts my sleep. 

For example, I’d love to understand the effect of a number of the tests at a more granular level:

    1. Going to bed at different times
    2. Different types of breathing routines
    3. Different doses of magnesium 
    4. Different lengths of fasting.

I don’t know how easy it will be to convince my girlfriend to track different breathing, fasting, and bedtime routines with me for the next two years, but I’ll certainly try.

Ultimately, this experiment helped me to find what improves and worsens my sleep and – I think more importantly – helped me to make lifestyle changes that help to improve my overall health. Combined with medical interventions, self-care habits have helped me to manage what was one of the toughest moments in my life.

👋 Need some help setting up your own health experiments?

Get in touch with us at support@bearable.app and we’ll help you decide what to track.

Colleen (Bipolar disorder and Schizophrenia)

When I was 17, I was diagnosed with schizophrenia and bipolar disorder. Still, 13 years later, I often experience delusions, paranoia, and hallucinations. Sometimes, I get confused with words and thoughts. I also suffer from major mood swings—some manias so high that I can’t sleep for days, and some depressions so low that I feel suicidal. I won’t say that the app has fixed it all, but it has helped make life, well, bearable. Best free Top Mood symptom tracker bullet journal tracking track health diary calendar chronic illness anxiety depression webmd daylio medication reminders gratitude mobile app graph stats insights habits help My goal in seeking an app was to track my illness and my day-to-day. I wanted *one* app that would log my symptoms, moods, and daily life, a place that would allow me to take notes on what happened that day. My memory isn’t great, and if I didn’t know what happened, I didn’t know how I could work to make it better. What was this mood? What were my symptoms at the time? What triggered it? Did I have to take medication to treat it? I knew none of the answers, let alone be able to communicate them to my doctors. Therefore, the biggest benefit to Bearable is its ability to make the user conscious of their own habits, moods, and patterns. Some patterns were obvious—I knew that taking a walk and cuddling with my cat improved my mood and symptoms. However, some things were new to me – my mood greatly dipped on Mondays and was best in the middle of the week. Once I was able to predict this, I learned to compensate for it. For example, could I schedule a nature walk on Mondays to help lift my mood? All of these analytics sound complex, but the app is actually quite simple to use. This is a must for me, as I try as much as possible to use it when symptomatic. A handy notification reminds me when to log in, although I often find myself adding information as I go about my day. It has quickly become part of my daily routine. I check off “factors,” or things that happen in my life when they occur. These may be things like the weather, my activity level, or where I’ve been that day. I mark my mood, tag it with feelings such as “bored,” “happy,” or “upset,” and jot down a few notes. I check off when I’ve taken important medications, enter what I’ve eaten, and mark the severity of whatever symptoms I’m experiencing. Some of the useful features, such as sleep, are automatically entered from Apple Health. Bearable has literally become a lifeline for me, and I imagine it would be for others, too. Not all patterns are obvious to someone with schizophrenia or bipolar disorder, and it’s amazing to have one organized place to learn about yourself. I can tell my doctors when I’m having a bad week and what important event might have triggered that. I can tell when my medications are working and how often I take them. I have insight into myself, and that would be invaluable for anyone with schizophrenia, bipolar disorder, or any illness at all. – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – Start to reclaim control over your well-being today!  Download Bearable for free on Apple or Android. Bearable App – Mood and Symptoms Tracker for Bipolar Disorder and Schizophrenia.

Michelle (BPD and Depression)

Hey there, my name is Michelle, I am 28 years old and I live with diagnosed borderline personality disorder and depression. My everyday life is usually a rollercoaster ride of emotions that takes me up and down without a break or warning; social interactions and interpersonal relationships are my kryptonite and I am in constant struggle with myself to allow closeness and love while another part of me fights against it. All that takes so much space and energy that important daily tasks are no longer feasible for me. Last year I lost my job and decided to go to a daycare clinic to learn to deal with my problems. I got some good strategies and used several apps that should help me to implement them in my daily life (e.g. by writing down situations and related feelings and reflecting on them, or writing a positive diary to direct thoughts more positively). Then I read about Bearable and was excited about the idea to have one single app where I can track everything important in one place and also have the possibility to customize everything individually. Best free Top Mood symptom tracker bullet journal tracking track health diary calendar chronic illness anxiety depression webmd daylio medication reminders gratitude mobile app graph stats insights habits help Meanwhile I use almost all functions the app offers. I started out by writing down my thoughts and feelings about different situations via mood tracking and highlighting respective factors in order to recognize possible connections over time via the very detailed insights, the calendar function, or even the graph, where you can select individual factors/moods/symptoms and combine them as needed. Special situations I have highlighted in the “Significant Events” feature.  The gratitude feature has helped me much better than expected to give my thoughts a push in the positive direction after half a year of “practice” and by tracking my symptoms and my sleep I have become aware that my legs are often very restless at night and now I clarify whether it could be RLS. I track my medication, have myself reminded to take it every morning, and recently started to use the food diary to keep an eye on my eating habits as I tend not to eat when I am feeling bad. Sometimes I can make the entries very promptly so that they are as “unaltered” as possible, but it’s not always time for that, so there are usually 5 – 10 minutes in the evening to catch up on it. And even if I’m in a bad mood, I can change the settings for the day so that everything is done with a few clicks. It has already become a nice little evening ritual for me. All in all, I think you could say that Bearable has helped me (and still does) to become more aware of my everyday life, listen more to what my body tells me, accept my feelings and fears, reflect on myself and situations – especially in a social context. It helps me to recognize important connections, become more optimistic, re-experience the feeling of self-efficacy – even more as I have the progress in front of my eyes.  Above all, it helped to recognize my needs behind all of this and to strengthen strategies by which I no longer feel so overwhelmed by my feelings that often.  insights bearable app symptom tracker mood social happy best mobile patterns bullet journal I’m just more “with me” again and I haven’t felt this way for a long time, because I am actually used to being heavily influenced by other people in my life. It doesn’t matter if it’s the character I somehow adapted to and under which I could never really find my own personality, or the needs of the other person, which I always put above my own because the fear of loss drove me crazy. Even now I still have to struggle with it sometimes, but it is a long way and Bearable not only accompanies me but has also allowed me to get a better insight behind the scenes. I really sat down, thought about my needs and finally got to know them.  By regularly reflecting on the app, they have even become friends somehow. I can only say that it has helped me tremendously to deal with myself.  Especially with the borderline disease, mindfulness in everyday life has become so indispensable for me to be able to deal with my emotions in different situations and even triggers I can sometimes absorb quite well. Without the Bearable app as a great self-learning and documentation tool, which you have at your fingertips at all times for quick entries, I don’t think I could have gotten this far in such a short time. I can only recommend everyone to try it out! – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – Start to reclaim control over your well-being today!  Download Bearable for free on Apple or Android. Bearable – Mood and Symptoms tracker for Depression and BPD  

Flarey (ADHD and Depression)

ADHD symptoms
I was recently on the phone with my doctor and she asked me “So when did you last miss your meds?” And I blanked. I had NO idea. A day? A week? Could it have been a month?? It happened all the time! “When was your last cycle?” Uhh… definitely… this year? And then I remembered – oh wait I have an app for that!! Let me check! This year, I was diagnosed with ADHD, after a lifetime of thinking I was a scatterbrained weirdo who had depression. I’ve been a bit of a mess all my life – but this, this made sense! I could finally start to piece it back together! I could now say for sure, it was ADHD that gave me an appalling memory, zero concept of time, the inability to just get up and do something, no ability to make new habits… So, to trial the new meds for it, I was writing down symptoms and issues as I noticed them, in a note on my phone! It wasn’t ideal. but enough to figure out a good dosage. Until suddenly, for no reason – my meds weren’t working and I had to know why! Something I now know about ADHD is that we tend to obsess, which is how I ended up on an all-day research kick.  I learnt that a woman’s hormonal cycle has a strong effect on ADHD medication!! My next step was obviously to track my cycle and match it up to check. bearable app mood symptom tracker COVID coronavirus virus MS fibromyalgia bipolar health diary bullet journal tracking symptoms best So I started the hunt for an app. I wanted to track my cycle – but I didn’t want pink and flowers, I didn’t want reminders of my fertility (getting pregnant is not the only reason we might want to keep track!).  I just wanted a calendar that showed the phases as I entered them!   I was forgetting my meds constantly too… (I remember taking them… but was that just before…? Or was that yesterday…) So I figured, an app to remind me would be great! Even better if it does both those things! But every medication app in existence wanted me to go count how many pills I had so it could monitor my supply… and cycle apps didn’t care if I was on medication or not. I searched high and low for this magical app. I didn’t think I was asking for that much – just an app that could keep track of my meds, remind me to take them – that could put a little marker on some days of the month for me – maybe that I could look at a little graph of my weight fluctuations? Or that I could graph my mood maybe!
Enter Bearable. I had first found out about it on Reddit. It. Was. PERFECT. I was seriously considering learning to code to solve this problem until I found it!
Every day, three times a day, the little bear pops up to say hey, medicine time! I take my meds, open the app to mark them as taken – and hey, while I’m here, I might as well check in! How am I feeling? What’s going on with my day? Any symptoms? Bam! Less than 3 minutes, done and dusted and all in one place. First thing every morning I stick my temperature, weight, that sort of thing into my Health app – Bearable grabs it for me! My Watch keeps track of my heart rate (gotta make sure those stimulants aren’t pumping me too far up!) – Bearable grabs that too! Since using Bearable, I’ve been able to track patterns – I now know when I’ll need more ADHD meds because the hormones make them less effective. No more wondering why everything sucks three days in… I now know that I actually only need half the antidepressants I used to be on – woohoo!!  ! With depression, a bad day feels like forever – now, I can look at the little calendar and see, it’s only been two days and this happened last time we had to go to the dentist too, it’ll pass! (I had never even considered tracking stuff like appointments, when I see family and friends, or factors that could affect my symptoms before! And I called myself a scientist??) This app is seriously my hero.  If you have ADHD or depression, if you’re trialing medication and tracking side effects, or even if you just want a straight-forward way to track your moods during your cycle – this is the one. You have found it! – – – – – – – – – – – – – – – – – – – – – – – – – – – – – – Start to reclaim control over your well-being today!  Download Bearable for free on Apple or Android. Bearable App – Mood and Symptoms Tracker for ADHD and Depression.