Lives with: CFS

I wish that people knew that fatigue isn’t just “being tired”. That literally everything (including just hearing sounds and seeing visual stimuli) drains energy, and has to be take into account when figuring out what I am able to do per day. That the worry of accidentally doing too much and not being able to look after my needs (Eg. Sit down and rest, go somewhere quiet) makes going outside or to unfamiliar places very scary and stressful. It’s like a count-down timer starts every time I leave the house, but I can’t see it or figure out how much time/energy I have left until its too late.

Lives with: Depression

My advice is: Doctors often look for a history of symptoms of an illness before they’ll consider a diagnosis of any kind. A log of symptoms with dates, charts, medications, and factors will surpass an “I don’t know” any day. The more a medical professional knows about your history, the better informed they can be when giving you a diagnosis.