I wish people knew the frequency of pain, as well as the number of days that are “I need to lie in bed all day” days.
Lives with: PoTS
It takes years to diagnose, time to manage, is often invisible, but isn’t the end of the world.
Lives with: PoTS
I wish more people knew how much it varies, it can be trigger by many different things but it also just varies of its own accord and you can go flip between good and bad days really frequently. Also how debilitating the symptoms can be even though you can’t see a lot of them, my most debilitating symptoms are nausea, dizziness and fatigue which it’s difficult to objectively see!
Lives with: ADHD
This year, I was diagnosed with ADHD, after a lifetime of thinking I was a scatterbrained weirdo who had depression. I’ve been a bit of a mess all my life – but this, this made sense! I could finally start to piece it back together! I could now say for sure, it was ADHD that gave me an appalling memory, zero concept of time, the inability to just get up and do something, no ability to make new habits.
